Spotlight on Nonprofit Organizations
Commentary
Many families of children with special needs rely upon Medicaid waivers to help them shoulder the cost of providing medical, therapy, nursing, respite, and other services for their children. These waivers, which are jointly funded by both state and federal dollars, vary widely in eligibility requirements, services, waiting lists, and programs. As a result, if a family chooses or is forced to move from one state to another, major problems may ensue. It simply is not right that a child's services and benefits should change dramatically because the family needs to relocate to a different state.
This Month's Focus: Spotlight on Nonprofit Organizations
Awards for Reader-Nominated Nonprofit Organizations
Starting a Nonprofit Organization: The Example of SWAN
by Amy Clugston
When seeking out an organization for support, most won't realize just how these organizations get started. A brief history or overview doesn't tell get at the heart of the inspiration or the challenging steps that it took to get there. I will tell you the story behind the organization I started, Syndromes Without A Name USA (SWAN).
Read More -->by Amy Clugston
When seeking out an organization for support, most won't realize just how these organizations get started. A brief history or overview doesn't tell get at the heart of the inspiration or the challenging steps that it took to get there. I will tell you the story behind the organization I started, Syndromes Without A Name USA (SWAN).
Specialty Article
GI and Nutrition
All About NG Tubes
Many children with special needs end up with a Nasogastric tube (NG tube) at some point in their lives. While a very useful device, the NG tube can also be a really bothersome and difficult thing to handle, both practically and emotionally. This article is a collection of tips and tricks for making the NG tube work, as well as parent-tested and recommended guidelines for use.
All About NG Tubes
Many children with special needs end up with a Nasogastric tube (NG tube) at some point in their lives. While a very useful device, the NG tube can also be a really bothersome and difficult thing to handle, both practically and emotionally. This article is a collection of tips and tricks for making the NG tube work, as well as parent-tested and recommended guidelines for use.
Feature
Finding Peer Support as a Parent
We all know the saying that it takes a village to raise a child. When the child has special needs, this saying is even truer. We need a village to help us with all aspects of raising our children with complex issues, including physical help, assistance with caregiving, medical assistance, practical guidance from others who have walked in our shoes, or emotional support.